大象传媒

Tha Goldenhar Syndrome air an dithis bhalach aig Shane agus Lynn ach tha an athair 'g 矛nnse dhuinn mar a tha iad a'fulang ann a d貌ighean eadar-dhealaichte. Tha s矛nn a'tadhal air Alex 's e cluiche ball-coise cuide ri mh脿thair 'sa bhr脿ithrean aig an dachaidh ann a Keiss, faisg air Inbhir 脵ige. Rugar Alex ann a suidheachadh gu math 猫iginneach bho chionn 3 bliadhna agus bha e seachdainean a'faighinn c霉ram ann an ospadal Rathaigmh貌r le mh脿thair Alison air ais 's air adhart on dachaidh ann a Gallaibh. Thainig Astrid agus Helena iad fhein na bu traithe na bha duil ach tha na bliadhnachan air falbh nan ruith agus tha iad a nis anns an sgoil Gh脿idhlig ann an Inbhirnis agus tha s矛nn a'tadhal air Stuart ann a Loch an Inbhir 's a cuimhneachadh mar a bh'fheudar dha mh脿thair Sarah, tighinn dhan ospadal air heileacoptar air latha Geamhradail bho chionn ceithir bliadhna.

In Inverness, Shane and Lynn's twin boys were born with the rare genetic condition Goldenhar syndrome, but as Dad explains, they are both affected in different ways.

Three years after a dramatic birth we catch up with Alex, playing football with his mum and brothers at home in Keiss near Wick. Alex spent many weeks in Raigmore hospital's Special Care Baby Unit, and mum Alison felt torn between being with her new baby and her two older boys in Caithness.

Twins Astrid and Helena were also slightly premature, and we followed mum Eilidh's determined struggle to breastfeed them. The girls have just started primary one in Bun Sgoil Gh脿idhlig Inbhirnis and come home from school with a new song.

We also catch up with four-year-old Stuart in Lochinver as we recall the snowy day mum Sarah had to be airlifted to Raigmore when she went into labour at home.