The man who helps actors 'blind up'
Consultant Joe Strechay on how he helps sighted actors portray blind characters. Would you buy a braille advent calendar as a Christmas present?
The new Apple Plus SciFi series See is about a world in which everyone is blind. Until twins are born sighted and become a reason for tribes to go in to battle.
Blindness consultant Joe Strechay tells Peter White how you teach sighted actors to portray blindness.
Advent For Change, a not-for-profit enterprise, has developed a braille advent calendar. She explains why it doesn鈥檛 contain chocolate.
Presenter: Peter White
Producer: Lee Kumutat
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THE ATTACHED TRANSCRIPT WAS TYPED FROM A RECORDING AND NOT COPIED FROM AN ORIGINAL SCRIPT.听 BECAUSE OF THE RISK OF MISHEARING AND THE DIFFICULTY IN SOME CASES OF IDENTIFYING INDIVIDUAL SPEAKERS, THE 大象传媒 CANNOT VOUCH FOR ITS COMPLETE ACCURACY.
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IN TOUCH 鈥 The man who helps actors 鈥榖lind up鈥
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TX:听 12.11.2019听 2040-2100
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PRESENTER:听 听听听听听听听 PETER WHITE
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PRODUCER:听 听听听听听听听听听 LEE KUMUTAT
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White
A couple of examples of that much prized buzz word 鈥渋nclusion鈥.听 In a few minutes, why there鈥檒l be some braille in the shops this Christmas 鈥 well one shop actually but it鈥檚 a start.听 And you don鈥檛 come much more included than tonight鈥檚 other guest 鈥 a blind film producer and advisor.听 Here鈥檚 why:
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Clip - See
Centuries from now almost all humans have lost the ability to see.
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[A group of woodland warriors moves over a rocky crest.]
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Some say sight was taken from them by God to heal the Earth.听 But after so many years the power of sight has returned.
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[A newborn is held.]
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The children, they have the ability to see.
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For centuries we feared this day would come.听 The evil of light once almost destroyed the world.
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And now it has returned.听 Find the children who can see and bring them to me.
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Well that鈥檚 from See 鈥 a four-part TV series made by Apple TV Plus, which started up at the beginning of this month.听 And they decided that if they were going to make a whole series based on blindness it might not be a bad idea to find someone to make sure they actually got it right.听
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Well Joe Strechay was hired for insights like this found on his You Tube page.
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Strechay 鈥 You Tube clip
You go up to the urinal with your cane and tap, tap, hopefully someone says something but otherwise you might be poking someone right between the legs or in the legs as they鈥檙e urinating and that鈥檚 鈥 that鈥檚 a treat 鈥 for them and you.听 I go into the stall, every public restroom stall is an adventure, so you go in there, you enter in there, you check for toilet paper because you don鈥檛 want to end up sitting in poop.
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White
Joe Strechay, welcome in person to the programme from Harrisburg in Pennsylvania?
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Strechay
Thank you so much for having me on, it鈥檚 a great pleasure, thank you.
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White
So, Joe, why did you get this gig?
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Strechay
So, I鈥檝e worked on a few other shows.听 I worked with the USA network鈥檚 Royal Pains with their writers鈥 room on three episodes of a show and then I worked on Marvel鈥檚 Daredevil on Netflix starring Charlie Cox, who鈥檚 a Brit.听 And then I worked on the OA for Netflix as well, starring Brit Marling and they sought me out, I鈥檝e had other opportunities but this one was the right opportunity and I believed in what they were trying to do.
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White
Just tell us a bit more about the basic premise of See though, the series.
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Strechay
Basically, there鈥檚 a viral apocalypse, somewhere between now and maybe a 100 or 200 years from now that kills of the majority of the population of Earth.听 We鈥檙e down to just a few million people left on Earth.听 And actually, those people emerge blind.听 And then our show takes place centuries later, maybe four or five centuries later, where people are living in societies and civilisations of sorts in different environments, living off the land, they鈥檙e all people who are blind.听 And then these twins are born, these twins with vision. It kind of changes things a little bit.
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White
Right, because people suddenly found this thing called sight that became a much-prized thing.听 But it鈥檚 not negative about blindness, is it, as I understand it?听 I mean this civilisation was doing okay without being able to see, weren鈥檛 they?
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Strechay
Yeah, I would say actually some people call it a dystopia, I would somewhat call it a utopia, you know, the land 鈥 the environment has recovered, these beautiful landscapes and you see the remnants of what the world was in the past but the environment has recovered and had time.听 And these people are living good lives.
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White
And we blind people haven鈥檛 stomped all over everything wrecking the world, is that right?
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Strechay
Exactly, exactly.听 There鈥檚 definitely some commentary on the environment and the current state of things in our show.
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White
Just briefly Joe, what鈥檚 your own background because you weren鈥檛 blind from birth, were you?
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Strechay
No, no, so I was born with an eye condition called retinitis pigmentosa and my vision deteriorated from the outside to the inside and I was legally blind at 19, diagnosed at 11 and lost my vision over time and I鈥檓 totally blind now.
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White
And I think you had that rather gentle introduction to blindness in the doctor鈥檚 office.
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Strechay
Oh definitely.听 I think I was 17 or 18, probably 18, just turned 18 maybe and the eye doctor鈥檚 like 鈥 yeah, you鈥檒l be totally blind by the time you鈥檙e 25.
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White
Just like that.
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Strechay
And then he left the room.
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White
I think some people will identify with that.听 Doctors say it鈥檚 very different now.听 Just to go back to the film making, the teaching, what was the hardest thing to teach sighted film actors about bring convincingly blind?
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Strechay
The portrayal of blindness is a sensitive thing, we always start from a place of education and awareness and addressing the misconceptions about blindness.听 And I train people in the skills that people who are blind use every day.听 So, it鈥檚 understanding how to trust your senses and use those senses in a different way, like using your hearing to pick up the sound of balls and different things and different objects at times or picking up the little subtle differences that your other senses 鈥 that most people don鈥檛 pay attention to 鈥 like your proprioceptive sense or your vestibula sense, like feeling the raise of the ground as you鈥檙e going towards something can become kind of a landmark for you to find whether it鈥檚 your stoop to your door or whether it鈥檚 some other building.
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White
Were there things they just didn鈥檛 get?
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Strechay
Yeah, you know no one who鈥檚 not blind is going to ever know what it鈥檚 like to be blind and our actors are pretty honest about that.听 You know some people didn鈥檛 get certain aspects and we just spent more time on it and you know it鈥檚 a portrayal, so, they鈥檙e not going to have all the skills people who are blind have.听 So, definitely, sometimes people mix up, what I would call, signalling, like signalling a person with echolocation, like there鈥檚 passive and active echolocation, so you鈥檙e using echolocation to find shape and space and define objects and other things and signalling you鈥檙e just letting someone know where something is or where you are.
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White
But couldn鈥檛 the production company actually have saved themselves your fee by hiring all genuinely blind actors?
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Strechay
But you鈥檙e also throwing out the idea that most people who are blind or low vision, right, like so low vision is different than totally blind, right, like even the movements of a person with low vision is different and the skills that they know.听 Often people with low vision don鈥檛 embrace or even utilise a lot of the independent skills that people who are totally blind utilise.听 So, either way I think I would be there, if we hired all people who are totally blind, you know, we鈥檙e not at a place where we have enough actors who are totally blind or low vision.听 But you know there are great opportunities.听 Marilee Talkington, who鈥檚 one of our actors, has just started an initiative around training actors who are blind or low vision and making sure it鈥檚 in an accessible curriculum designed for them.
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White
But what I guess you鈥檙e saying, is quite a lot of blind people aren鈥檛 that good at being blind.
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Strechay
I鈥檓 just saying people who have vision tend to use that vision.听 So, that鈥檚 all I鈥檓 saying.
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White
Well Joe Strechay鈥檚 our guest, stay with us Joe, because we also want to talk, for a moment, about a very different kind of inclusion.听 For many people, the advent calendar is an integral part of the celebration of Christmas and even for those people who aren鈥檛 necessarily practising Christians the ticking off of the days till Christmas by opening the calendar doors takes them back to their childhood.听 Well this year, there鈥檚 to be a braille advent calendar, a few in fact, a very few, in the shops and more online and one of them is in front of me and it is a bit of doorstep actually.听 It is a book with braille pages鈥
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Kumutat
Are you sure it鈥檚 a book?
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White
Well, hang on, you haven鈥檛 touched it have you?
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Kumutat
Well no, I haven鈥檛鈥
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White
Let me pass it across to you.
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Kumutat
It sounds like a brick.
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White
There you are, it is a brick.
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Kumutat
Is it, where are you?
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White
If I hit you with it, got it?
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Kumutat
Don鈥檛 throw it.
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White
There it is.听 It is big isn鈥檛 it?
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Kumutat
It鈥檚 huge.
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White
Yeah.
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Kumutat
It鈥檚 definitely 鈥 this is Lee Kumutat, the producer by the way, I was permitted to enter the studio.听 When we looked at doing this, I expected it to be like the braille calendars, you know the wall braille calendars that you get?听 And I was just thinking how is this going to be done because the braille wall calendars are kind of flimsy, aren鈥檛 they, there鈥檚 not that much to them and they鈥檙e quite thin.
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White
No.听 Why don鈥檛 we bring in the expert?听 This is the brainchild of Kristina Salceanu, who runs a not-for-profit trader Advent of Change.听 So, why an advent calendar?
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Salceanu
It鈥檚 really funny to hear you talk about the size of the calendar because we did joke when producing them that we might have to deliver them with a forklift truck because they did end up having to be quite big, just to fit everything in.听 But the reason that we went with the advent calendar is that it鈥檚 our signature product, essentially.听 Last year it was our only product and we actually raised 拢100,000 for charity with the advent calendar last year.听 But we sort of had this dawning realisation upon starting this year that actually there鈥檚 a group of people out there who not only wouldn鈥檛 be able to use the calendar as it was but actually would feel really excluded from it and we hated that and so that鈥檚 where we decided to make it accessible.
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White
But I guess the thing is you didn鈥檛 know much about braille when you started this and I gather you鈥檝e had a few surprises.
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Salceanu
We did.听 I have to be honest, I knew absolutely nothing about braille when starting the project and was probably incredibly na茂ve.听 I sort of thought well, it鈥檚 a paper product, it鈥檚 made on card, surely it would be really easy to just add braille to it.听 So, funnily enough, the first thing that I did was go and speak to John Lewis and talk to them about the product, they loved it, said of course we鈥檒l take it, what a great idea, we鈥檇 love to help.听 And so, at that point, off I went on my way thinking easy-peasy we鈥檒l just create a braille version.
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White
I gather you couldn鈥檛 get anyone to print it to start with?
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Salceanu
No, so I actually thought it would already exist and it would just be a case of creating our version. 听I was really surprised to find that in the UK there was no braille advent calendar and there was certainly not anything that was as text based as ours.听 And so, essentially, it was a case of starting from scratch.
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White
And what did people say to you, what kind of things did they say about what the problems were?
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Salceanu
Ah well the main thing I got told a lot was that it was completely impossible.听 And I heard that a lot.听 So, I just started googling, essentially, how to add braille.听 I called pretty much everybody on the first couple of pages of Google, I got through to about six, I sent samples to about four and everybody told me it wasn鈥檛 possible.听 For a number of reasons, so, obviously braille is much bigger than the text that we have as standard on the calendar and also it was really important to us when developing the advent calendar that it wasn鈥檛 a lesser product, it wasn鈥檛 a more than product, it was just an equal product.听 And for that reason, we really wanted to have the perforations, we wanted to have that surprise element, we wanted something hidden behind the doors.听 And actually, having braille behind a perforation has literally never been done before.
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White
Lee and I have been speculating about the braille behind the perforations because one of the things that we have wondered is whether reading the back of it you can鈥檛 actually 鈥 a good braillist with sensitive fingers couldn鈥檛 read it without actually opening it, we wondered.听 I haven鈥檛 quite managed to pull this off yet but I don鈥檛 see why not.
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Kumutat
I鈥檓 trying now but I think the challenge鈥
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White
Will you be cross with us if we succeed in this Kristina?
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Salceanu
No by all means, please do.
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Kumutat
It will keep us amused.
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White
It will, could keep us very quiet.
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One of the things we should say, while Lee is trying to do her version of the Rubik鈥檚 cube, is that one of the key differences with your calendar is that you don鈥檛 get little gifts inside it, do you, as you do with normal calendars, you give gifts.
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Salceanu
All of our advent calendars donate to 24 different charities.听 So, every single day, instead of opening a door and finding a little piece of chocolate, not that there鈥檚 anything wrong with a little piece of chocolate, you actually discover a new charity and you find out how you鈥檝e helped that charity.听 So, to give you a couple of examples, it could be 鈥渢oday you鈥檝e given a hot meal to a homeless person鈥 or 鈥渢oday, you鈥檝e picked up 50 items of plastic from our shores鈥 or 鈥渢oday, you鈥檝e given a blanket to a child refugee鈥.
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White
So, if it鈥檚 such a good idea why so few in the shops?
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Salceanu
Well it鈥檚 been really difficult for us to produce them actually.听 So, we鈥檝e had a number of stumbling blocks and one of those is cost.听 So, you can imagine being a brand-new product, it鈥檚 been quite costly for us to produce them and also, we just have no idea how many we鈥檒l sell.听 But we thought the best way to do that and the best way to make sure they don鈥檛 get bashed around too much was to make that readily available online and to put it in sort of the high-profile John Lewis stores.听 And maybe next year that鈥檒l be different, maybe next year they鈥檒l be in every store but we鈥檒l need for people to go out and buy them, essentially, to make that possible, so we can prove the concept.
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White
I mean it鈥檚 a pound a page you give don鈥檛 you, it鈥檚 a pound a day, so you鈥檙e giving to 24 charities effectively鈥
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Salceanu
Yes, that鈥檚 exactly it.
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White
And you have to pay VAT.
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Salceanu 听
I know, I know, it鈥檚 an absolute pain, so if anybody鈥檚 listening from HMRC please 鈥 please feel free to change that legislation.
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White
They listen all the time, the tax people.
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Kumutat
There is one advantage though, that you can send them articles for the blind can鈥檛 you.
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White
If it鈥檚 a braille product, you can send鈥
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Kumutat
You can save on postage and send them articles for the blind.
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White
Kristina, thanks very much.
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Joe Strechay, I hope, is still with us from Pennsylvania.听 Joe, what present would you like invented for you for Christmas or equalising, as it were, with a sighted equivalent?
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Strechay
Is this a philosophical one like changing the employment rate of people who are blind or low vision?
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White
You can do that, yeah.
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Strechay
Okay, there we go.
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White
What is it in America, in the States what鈥檚 the rate at the moment?
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Strechay
There鈥檚 debates about it but it鈥檚 somewhere around like 鈥 some people say 58% of people who are blind or low vision are unemployed, or it might be even as high as 64% unemployed.听 And then they go higher when you say under-employed because over 70%.听 And there鈥檚 a hidden population of people who have not been in active in the employment process in so long that they鈥檙e not even counted.
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White
So, come on, we鈥檒l keep it simple, give us the numbers you鈥檇 like to see employed, what would you think would be a practical aim of getting people employed?听 Could it be the same as the rest of the population?
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Strechay
I would say similar.听 I think that鈥檚 a goal but we鈥檙e nowhere near that at this point, so if we cut in half that would make me feel great.
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White
I鈥檇 just like to bring you back to the series See before we have to end.听 Does a series like this really improve people鈥檚 understanding of blindness do you think or does it perhaps just reinforce the idea that we鈥檙e all marvellous superheroes with superpowers?听 After all, the truth about being blind is a lot of coping with it is rather banal, isn鈥檛 it, like your bathroom advice at the beginning of the programme?
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Strechay
I think it changes the script basically.听 Most portrayals of blindness are comical and don鈥檛 show people who are blind doing things that we do everyday in life, typically they are people who need help or they鈥檙e just sitting in the corner, they鈥檙e a person with a disability and that鈥檚 their role.听 Our show shows them as villains, as warriors, as lovers, as parents, as people doing trades and that鈥檚 something you don鈥檛 see typically.
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Kumutat
Isn鈥檛 it really just a slick vehicle for an action adventure sci-fi series and it doesn鈥檛 mean anything and producers haven鈥檛 thought very deeply about blindness at all?
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Strechay
That鈥檚 an interesting point.听 It is a piece of entertainment, like the goal is to create this product, an idea that was out there that hadn鈥檛 been done.听 But right from the beginning, the discussion was 鈥 how can we make this inclusive, how can we bring actors who are blind or low vision.听 I wouldn鈥檛 have worked on it if they hadn鈥檛, truthfully.听 At this point in time, that鈥檚 where we going and we need to be going.听 And we had numerous actors who were blind or low vision, we had two stunt performers, we had numerous background who were blind or low vision and we鈥檒l continue to grow in season two and have that opportunity.
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Kumutat
Pete and I will send you our cards for the next series.
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White
Yeah, we will, we鈥檇 love to do it.
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Strechay
Yeah, well we still have four more episodes launching and look for more.听 And I鈥檒l tell you each episode, as we 鈥 we kind of build the plane while we were flying it, each episode includes more and more blindness.听 So, episode four, you just saw, and five and six and seven are some of my favourites and include a little pieces that most people won鈥檛 even realise.
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White
Joe Strechay, that鈥檚 all we鈥檝e got time for.听 Thank you so much for joining us today.听 Also, our thanks to Kristina Salceanu.听 And Lee, while you鈥檝e been ferreting about, found any chocolates in that calendar?
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Kumutat
No, that is one great failing of this calendar.
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White
Why no chocolates Kristina?
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Kumutat
Yeah, honestly.
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Salceanu
We did toy with the idea of adding a surprise chocolate behind the 24th door this year actually.
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Kumutat
Next year Kristina.
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White
I actually nipped out, Lee, at lunchtime and got you some chocolate.
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Kumutat
Ah, ah thanks Pete.
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White
So, you can put it in the advent calendar if you like.
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Kumutat
Thank you.听 Right o Pete, hand it over.
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White
That鈥檚 In Touch from me, Peter White, producer with a sweet tooth Lee Kumutat, our guests and the team, goodbye.
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- Tue 12 Nov 2019 20:40大象传媒 Radio 4
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In Touch
News, views and information for people who are blind or partially sighted