大象传媒

In this five-part series, neurologist Jules Montague and William Miller go into the homes of people with rare dementias, to discover that dementia is not what we think it is.

It鈥檚 a common misconception that dementia is a condition that only affects memory - but Alzheimer鈥檚 is only one form of dementia, there are many more. Because the symptoms of rare dementias can be so atypical, often in younger people, those with rare dementias wait twice as long for a diagnosis and a third are initially misdiagnosed.

The symptoms of these dementias go far beyond memory loss. William and Jules meet a man who hallucinates cats and rabbits in his living room, a novelist who is losing her words, a former teacher who cannot see what鈥檚 right in front of her, and a family struggling with a genetic legacy that has defined their past and could determine their future.

Dr Jules Montague is a dementia specialist, and William has personal experience of its impact having cared for his father, theatre director Jonathan Miller, who died of Alzheimer鈥檚 in 2019. Together they explore the science behind the symptoms and the poignant and extraordinary ways in which families navigate their lives as a result of these conditions.

In this episode, they meet Geraint and his wife Jacqui. In 2020 Geraint received a diagnosis of frontotemporal dementia - or FTD - which results in a profound transformation in behaviour and personal identity.

Details of organisations offering information and support with dementia are available at the 大象传媒 Action Line here: /programmes/articles/1Y8B7y39T07GnTlMsLPJG2S/information-and-support-dementia

Producer: Eve Streeter
Original music: A Brief Encounter by Max Walter
A Raconteur production for 大象传媒 Radio 4