大象传媒

A family from Leicester have a Christmas wish with a difference this year.....

Five year old Shinay Godfrey from New Parks is currently the only known UK sufferer of an extremely rare medical condition that causes growths to rapidly appear over her eyes.

Shinay's mother Donna is hoping to find somebody else who suffers from the illness so she can share experiences with them and perhaps find alternative treatments.

Our reporter Kristina Hrywnak went to visit Donna and Shinay at their home in New Parks...