大象传媒

It's Spinal Muscle Atrophy awareness month, and Kiana, who has type 2 SMA, explains what the genetic condition means.

SMA is muscle weakness and it means that Kiana needs a wheelchair to get from A to Z and support to facilitate independent living. SMA makes it more difficult to move, eat and even breathe. There is no cure for SMA at the moment but the FDA has approved a treatment called Spinraza that has had amazing effects for those who have access to it.

Regardless of Kiana's physical ability, she believes she can do anything she puts her mind to (except tidy her room).