大象传媒

A man from Solihull's desperately campaigning on behalf of his wife who's one of only two people in the UK to have a rare form of a genetic disorder.

Claire Edwards was diagnosed at the age of 44 with AARS2 leukodystrophy in 2019.

It affects the development of the brain and nervous system - causing damage to nerve cells which gets worse over time.

Claire's husband Paul has given his first radio interview to 大象传媒 Radio WM.