Main content

What is it like to grow up with HIV?

鈥淒on鈥檛 tell anyone! For the longest time I felt like I was the only person in the world living with HIV.鈥 Two young women born with the virus speak frankly about their experiences

鈥淚 hated myself so much. But now I have the courage to love myself and see myself beyond this virus.鈥

Singing a song in class with the words 鈥楢ids is a killer disease鈥 when none of your classmates know you鈥檙e HIV positive鈥

Telling friends your status and then finding people are afraid to touch you鈥

Being told by young men that you鈥檙e 鈥榣ucky鈥 they will date you.

Two young women from South Africa and Kenya who were born with the virus share an emotional discussion about how these experiences impacted on their childhood and mental health. Nomonde Ngema is a 21 year old HIV activist from KwaZulu-Natal who shares videos on TikTok about her daily life managing her illness. Jerop Limo is a 24-year-old activist from Kenya.

Both are currently in New York to speak to world leaders as part of the UN鈥檚 Summit of the Future 鈥 before the General Assembly debates start next week.

They鈥檝e both decided to speak openly about their status and experiences to help other young people with the virus know they鈥檙e not alone.

According to the World Health Organisation there are about 1.5 million children under the age of 14 currently living with HIV.

Release date:

Available now

22 minutes

Podcast