Last updated:聽28 september, 2009 - 16:40 GMT
The right to know
What would you do if you knew your daughter of 13 was going to die in six months time?
Would you tell her and try and make the rest of her life special? Or would you live with the knowledge but keep it secret from her, her father and brother?
Jeanette Gilderdale had to make that decision, and has been criticised for the choice she made.
Her daughter Rachael had skin cancer and though she lived more than three years longer than the six months predicted by her doctors, she died a month before her eighteenth birthday.
Her mother explained her reasoning to Outlook.
The charity set up by Jeanette Gilderdale: