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A member of the disability apartheid

  • Posted by Elizabeth McClung
  • 20 Aug 07, 6:41 AM

What surprised me this week was not just the awareness of a disability apartheid, but the short space of time it had taken me to completely accept that I too did not deserve equal access. I was jolted awake with last week鈥檚 ). Ota, after buying a ticket on Singapore Airlines was refused airplane entry at Kanasi international airport because of his 鈥渄isabilities to his limbs and in speaking ability.鈥 Ota had obviously bought the ticket, gone to the airport, and gone through some of the check-in when, two hours before the flight, his visible disability was noted and he was denied entry to the flight. The judge said that the captain and flight crew must 鈥渉ave a common view鈥 on what to do in an emergency. Or rather, seeing someone with CP, the flight crew didn鈥檛 know what to do, didn鈥檛 know how much help Ota would need, was not trained in giving that help, and decided the solution to the problem was to force it back on Masayuki Ota (in denying him the right of equal access to goods and services) rather than change the organizational structure.

Having been on planes with people who speak almost a dozen different languages (none of which matched the safety announcements), I find the excuse of 鈥渟afety in times of emergency鈥 to be laughable. The fact is, you can be too drunk to stand up while on an airplane (as I was once when I got bumped to first class and went crazy on free champagne) much less find an escape hatch and still have no problem from the staff. But if your limbs twitch and you slur your words on boarding however...... As for 鈥渟pecial attention鈥 there is always at least one person who pushes the 鈥渃rew attention鈥 button within three minutes of boarding (and every 4 minutes thereafter), but again, they don鈥檛 have speech difficulties and a visable disability.

Admittedly, this event occurred in Japan, a country where the government poll earlier this year found that about the airline, 鈥渢hey are not running an air ambulance service. The next thing you know quadriplegics will expect the same consideration鈥. While Ota鈥檚 lawyer said, 鈥渄isabled people cannot move freely if it is necessary for them to notify in advance each time what disorders they have鈥.

These two statements struck home because I have so often encountered the first attitude, and only now realized how much I had accepted the second. I am so used to being left behind by wheelchair accessible buses whose drivers don鈥檛 want to ask able bodied people to move for me that I don鈥檛 even bother complaining (not after the training manager informed me he told his drivers they could leave wheelchairs behind in 鈥渟ome鈥 circumstances). Indeed, when I go to a restaurant and am told that the two tables in the entire establishment I could have used are full and I will have to wait and hour or more (though the restaurant is half empty), I now consider it my fault for not notifying them in advance.

I moved from the UK before they had passed a law ensuring that people could not deny goods or services based on sexual orientation. And you should have heard my screaming every time someone told Linda or I, 鈥淣o, can鈥檛 do it, not for you鈥 because we were lesbians. If last year, someone had told me, 鈥淪orry, tall females can鈥檛 eat/shop/get haircuts/get beauty treatments/exercise here鈥 I would have run to the papers with a strange glint of righteous fury in my eye. These days, because I can鈥檛 run anywhere, getting told that about twice a day is normal. Wednesday, when I went to the mall I was told by one store clerk, 鈥淭his isn鈥檛 a store for wheelchairs to come in鈥 and I was like, 鈥淥kay.鈥 (Remember, I live in Canada; no disability laws here). If I don鈥檛 give advance notice AND a doctor鈥檚 note, I don鈥檛 get to use the gym or board a plane. I was talking to my physiotherapist about getting a doctor鈥檚 note for the BC ferry system to use their first aid bed while on board and she told me not to do it because 鈥渢hen they (BC Ferries) might decide to ban you from using their ferries.鈥 That鈥檚 not something you want to hear when you live on an island. I鈥檝e been banned from gyms, I鈥檝e been turned down by agencies which transport people to medical appointments after being told I would have to hire the car and an RN at my expense. I agreed. They then decided, 鈥淚t wasn鈥檛 worth the risk.鈥

So why do the same gyms which turn me away have subsidized exercise programs for people recovering from a heart attack; the same gyms who allow type A personality 鈥渉eart attacks waiting to happen鈥 people to come and do what they please without a blink of an eye? And these are the gyms which require me to have authorization from a doctor, AND the head of the gym AND the athletic director? But more important, why do I think that is normal? Talk as much as you want about a social model of disability or a society not able or willing to see and treat disabled as equal; but at what point did people under apartheid accept that it was 鈥渏ust the way things were.鈥 Why is it my responsibility to tell everyone everywhere I wish to go in order to ask permission from them first? And when, in just six short months, did this become something I don鈥檛 even think about anymore?

The overwhelming majority of comments on the airline article support the airline in not allowing the man with CP on board, including comments from airline crew staff. One crew member asks; how am I, a woman, supposed to help him wipe himself in the bathroom? Another wants to know how Ota could think about foisting the responsibility on others when it was HIS role to find someone to accompany him. It was? Under what law does being disabled mean the person with the disability is required to find themselves 鈥渁 keeper?鈥 Particularly when it is so clear that those commenting (and likely those on the flight) had no idea of what different disabilities there are, much less that disability needs are individual. 鈥淭he next thing you know quadriplegics will expect the same consideration鈥: Ignoring that the comment seems to put quadriplegics on the same level as certain animals; as the videos on

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    I have lived with mental disabilities since early childhood and became physically disabled in an accident 15 years ago. To this day I am just flabbergasted at some of the things I've seen and endured. I have just started working on creating a blog for disabled artists (visual- paintings, digital art, etc.) to try to help others like me to show some of what we create and offer the world. for any that would like to visit though it is just a few of mine till other disabled artists find out about it.

    For anyone that would like to read journal entries as to some of what I as a disabled person face as I try to build a life for myself, click on my personal blog link (where I post such entries).

    I was just thinking today, on your point about the ignorance and prejudice out there that is limiting - about how lately I've noticed myself saying to people "Why not?" when they tell me I can't/shouldn't do something. It really evokes interesting reactions but in a way I don't care about that. It feels affirming to me to just say those two words.

    "You can't do that (with your disability)(because of your disability) (because of my reaction to your disability)."
    "Why not?"

    The first few years are hard. No matter our physical/mental status, we learn that disability or impairment = social death. It's hard for a ghost to speak up for herself!


    Laura Hershey is disability rights activist who has answered your exact question with a fabulous poem I read whenever I鈥檓 feeling overwhelmed by the disability apartheid.

    You can read all of You Get Proud by Practicing at her website, www.cripcommentary.com. Here are the first two stanzas:

    If you are not proud
    for who you are, for what you say, for how you look;
    if every time you stop
    to think of yourself, you do not see yourself glowing
    with golden light; do not, therefore, give up on yourself.
    You can
    get proud.

    You do not need
    鈥╝ better body, a purer spirit, or a Ph.D.
    鈥╰o be proud.
    鈥╕ou do not need
    鈥╝ lot of money, a handsome boyfriend, or a nice car.
    鈥╕ou do not need
    鈥╰o be able to walk, or see, or hear,
    鈥╫r use big, complicated words,
    鈥╫r do any of the things that you just can't do
    鈥╰o be proud. A caseworker
    鈥╟annot make you proud,
    鈥╫r a doctor.
    鈥╕ou only need
    鈥╩ore practice.
    鈥╕ou get proud
    鈥╞y practicing.

    Randall: Thanks for working to break down the barriers - I have a feeling there are a lot of stories out there.

    Ruth: "Why Not?" - hey, I'll try it.

    Jesse the K: I like that line "It's hard for a ghost to speak up for herself" - great encapsulation. Thanks for the poem - I'm going to get practicing.

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