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So What If My Baby Is Born Like Me?

Treacher-Collins syndrome sufferer Jono Lancaster goes on a quest to find out the options available to carriers of genetic conditions should they decide to start a family.

Jono Lancaster, 26, (featured in 大象传媒3's Love Me Love My Face documentary) has suffered rejection and discrimination his entire life - all because of the way he looks. Born with a rare genetic condition, Treacher-Collins syndrome, Jono has no cheekbones or external ears and has endured years of bullying and countless hospital appointments.

The nature of the condition means that any child Jono fathers will have a 50 per cent chance of contracting Treacher-Collins. Now Jono has an important question he wants answered - what if my baby was born like me?

The film follows Jono and his girlfriend Laura as they go on a quest to find out the options available to them should they decide to start a family. Jono meets a variety of families who have faced or are facing this very conundrum. He also meets with youngsters affected by Treacher-Collins to see if attitudes have changed since his days at school.

Confronted by all the options, what will they decide? And will the decisions they make draw them closer together?

1 hour

Last on

Wed 24 Aug 2011 02:20

Credits

Role Contributor
Narrator Matt Rudge
Producer Matt Rudge
Director Matt Rudge
Executive Producer Fiona Campbell
Executive Producer Ravinder Chahal

Broadcasts